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TREATMENT OPTIONS
A Guide to Understanding
Patient and the "Partnership" of Shared Responsibility
Involved in Medical Decision-Making
Making a truly informed medical decision involves
more than a single decision. It is a step-by-step process in which
you take responsibility for making a number of decisions.
Your decision to seek help was the first step in that process. The
rest of the process is described below.
You can't make an informed decision about something you do not
understand. So your first step is to gain knowledge about your
disease. To accomplish this, you will need to:
- listen carefully to your health care professionals when
you are presented with a diagnosis of your condition and a
description of your treatment options;
- thoroughly read any literature provided by your health care
team;
- seek out information on your own (many associations provide
literature free of charge to the general public); and
- ask questions about anything you do not understand.
DECISION #1: Am I willing to take a
studious approach to understanding my condition?
Once you have gained adequate information about your condition,
you must next weigh the risks and benefits associated with your
various treatment options. Keep in mind the impact your condition
has on your way of life. Consider the limitations that your symptoms
place on your ability to perform those activities that are most
important to you.
In some cases, you may discover that the
risks involved in having a particular treatment are greater than the
benefit you may gain from it. In other cases, the benefit to be
gained may outweigh any possible risk. Discuss these issues with
your family, and ask your health care team about anything you do not
understand.
DECISION #2: Do the potential benefits of
this treatment outweigh the possible risks?
What do you want to accomplish by having medical treatment? Do
you want to simply gain relief from pain or do you want to return to
a particular level of physical activity? After you determine what
your goals are, ask your health care professional if your
expectations are realistic and what you will have to do to
accomplish your goals.
DECISION #3: Am I willing to develop and
accept realistic expectations?
Medical treatment may help to relieve your symptoms, but can't
heal your body or return it to a former state of health. Treatment
is only the beginning of your recovery process. As your body
begins to heal on its own, you must make a physical and a
mental commitment to working at regaining your lost
abilities. Recognize that it is your effort, your lifestyle
choices and the severity of your medical condition that will
determine the degree to which you can return to a normal level of
activity.
DECISION #4: Am I willing to work at
recovery, including making lifestyle changes if
necessary?
After you have answered the first four questions, all that
remains is for you to make a final decision about which treatment
option is best for you. It may be helpful to discuss your options
with your family and members of your health care team, but in the
end only you can make the final decision. Once you make that
decision, trust in it, look to the future and work to achieve the
best possible recovery.
DECISION #5: Am I willing to accept
responsibility for my own health care decisions?
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By taking ownership of your health care decisions, you
are likely to have:
- prior to and during
your treatment;
- , which
can help to increase your body's own healing powers;
- because you
are committed to actively participating in returning
to a normal level of activity; and
-
because you have realistic goals and work steadily to
achieve them.
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Traditionally, medical decisions were made for patients by
their health care professionals. The attitude was that doctors and
nurses, as experts in the field, were the ones best prepared to
choose what was "indicated" for the patient. As a result, patients
were left with only a passive role in the decision-making
process. It's not difficult to recognize that this is neither a wise
nor a desirable way to make any major decision.
Today, consumers of medical services are seeking to be involved
in a meaningful way in the health care decisions. To take
that meaningful role and to make a truly informed decision,
patients need information about:
- their medical condition;
- the risks and benefits of their various treatment options; and
- their responsibility for actively participating in the
treatment and recovery process.
Once patients are empowered with this information, they
enter into a "partnership" of shared responsibility with
their health care professionals, in which each party agrees to
fulfill certain obligations.
In a patient-centered approach to medical decision-making, health
care professionals are responsible for:
- establishing a diagnosis;
- presenting appropriate treatment options, including their
risks and benefits;
- providing patient education;
- providing the necessary technical skills; and
- supporting you during your recovery.
In this process, you are responsible for:
- taking a studious approach to learning about your
medical condition;
- weighing the risks and benefits of your various treatment
options and accepting their outcomes;
- developing realistic expectations;
- making the final decision about which treatment option is best
for you;
- supporting your health care team by faithfully following their
instructions; and
- working at recovering from your condition, including
making lifestyle changes if necessary.
Remember, it is your body that will heal itself and your own
efforts that will lead to your recovery.
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